It’s rather unfortunate that autism has the less-than-favorable reputation it does. Sure, it’s more accepted than ever, to the point where it’s trendy on TikTok to claim neurodivergence (a trend I have mixed feelings about if I’m honest). But many on the spectrum still feel misunderstood by the public, with only 16 percent of autistic folks and their families feeling people actually “get” them and many choosing not to interact with the world because of it. It’s a big reason I’m self-diagnosed — when my childhood psychologist suggested the “A” word back in the early 2000s, my well-meaning parents ran the opposite direction, afraid their beloved daughter would get saddled with a label that would get her further ostracized by her peers. My girlfriend had a similar experience growing up. And then you have people like RFK Jr. who say — and I quote:
“[Autistic people will] never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date.”
So yeah, it’s pretty clear the world looks down on us for being different, which, to be fair, has always been the case. It’s never been “cool” to be autistic, right? Why would anyone want to be on the autism spectrum?
Here’s where I’d say “Wrongo, partner!”
There are lots of special kinds of joy that come with being autistic, or even ADHD and similar kinds of neurospicy. There’s been quite a bit written on the neurodivergent love languages, many of which I feel are closely connected to the kinds of neurodivergent joy. That neurodivergent joy is what I want to write about, because I saw it at work amongst me, my ADHD wife, and my AuDHD girlfriend this past weekend when I took them to my hometown. That brings me to my first joy:
1. Sharing Lore
Taking my partners back home was such a cool experience. I got to share so many parts of my backstory with them, parts I couldn’t show them without taking them to the exact place in time where my story unfolded. I could point out my high school, the Dairy Queen I went to as a kid, all my favorite plushies in my childhood bedroom, and so much more. It’s all part of my lore, as I’ve started to say. Sharing parts of your past with your loved ones scratches the same itch as infodumping, except in this case, you’re infodumping about yourself!
Hearing other people’s lore helps us connect to them as well. This past weekend, my dad regaled us with the story of how he saved for two months to go to Woodstock, despite his coworkers making fun of him, because he knew it was going to be a big deal. He ended up going with six friends and left with 28. I knew music was a big part of my family’s lore, but I never truly knew the extent to which my own father was present for a huge moment in music history. Just taking that time to talk to him gave me a lot of joy.
2. Sharing Media
During the trip, I allowed my girlfriend, Livvy, to take control of the hotel television, since she has some sensory stuff regarding talking and background noise. Most of the time, she left the TV off and the three of us, ya know, engaged with the outside world. But when we got back to the room every night, Livvy would search for one of her childhood favorite shows, Zoom. She loved that show so much that her grandparents taped it and sent it to her so she could still watch it after it went off the air. And now, she wanted to share it with us!
I can’t express how happy she was that we not only took the time to watch what she wanted to show us, but actively participated in it as well. We started daydreaming funny skits and science experiments we could do in our spare time, like the kids on the show. We even had our favorite cast members and tried doing the “ubby wubby” language ourselves (with little success). Livvy was so pleased we were as into the show as she was!
3. Being Around Other Neurospicy Folks
When you’re wired differently, it can be exhausting masking in order to fit in with polite society. Masking is typically associated with “higher functioning” autistic individuals, as shitty and outdated as that terminology is (we prefer people refer to our support needs instead of the “high and low functioning” labels). As someone who’s gotten so good at masking that many outsiders aren’t aware I have the ‘tism in the first place, I can tell you it’s absolutely exhausting. It’s a form of hyper-vigilance and suppressing natural urges. You basically have to water down your entire personality.
But when you’re in a group of other neurodivergent people, you can let all of that fall away and reveal your true self. I don’t have to pretend to be interested in mundane things. I don’t have to make eye contact (which is scary as hell to me if I’m honest). I don’t even have to say words. I can communicate in noises if I want to, and oftentimes, that’s exactly what my partners and I do! It’s freeing to not be restricted by social norms and expectations.
4. Researching What You Love
I (probably rightfully) get a lot of crap from my loved ones for being too glued to my phone, but I’m going to let you all in on a little secret. If you see me on my phone, there’s a very small chance I’m texting a friend. More likely than not, I’m reading!
I’ve always been like this, and I’d be the first to admit that had smartphones not been invented, I’d have to carry a huge bag of books around with me everywhere I go. I’m always reading something or other, usually nonfiction, and usually about one of my special interests. I love reading about creativity, spirituality, or whatever library book has captured my attention most recently. When I was a kid, I’d hide in the nook between the kitchen and the bathroom in my grandma’s house, right where she kept a complete set of Encyclopedia Britannicas on a bookcase, and just study them for hours. I kind of miss physical books, if I’m honest, but I love having the ability to read about anything and everything at a whim nowadays. It’s a kind of special joy.
5. Being Respected
Obviously we love researching things, but we also love getting recognized for our research too! We love the thought of being an expert in our field of interest, even if it’s not a formal area of study. For me, music theory is a big area of interest. I do have a degree in music, which does make me feel good about myself, but even more than that, I love when people tell me that I’m knowledgeable. Even more than that, I love when I get a chance to demonstrate my knowledge. When someone asks me why a song works, I’m always happy to explain things like chord progressions and the circle of fifths and why those concepts are important in popular music.
I think that’s why it almost feels like a personal slight when we don’t get the respect we require as it involves a particular special interest. I still remember the one of the only times a non-music professor made me feel like shit about my abilities and know-how. It took me years to recover and get back to a place where I felt confident about myself in music again. We autistic and ADHD folks are so sensitive to the slightest criticism — we’re prone to rejection sensitive dysphoria for a reason — but the flip side is that we get an even stronger sense of pride from positive feedback.
Which of these “joys” do you relate to the most? Leave a comment below! And as always, if you enjoyed the writing in this post and elsewhere on the site, please consider donating to Jessa’s tuition fund! Any help is appreciated!
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